Mudgee parents Alanah Lewis and Jeff Dray are asking the community to support research into Congenital Diaphragmatic Hernia (CDH) by CDH Australia after their son, Miller passed away from the condition on December 28, one day after being born.
In a post on social media, Miller's father, Jeff Dray wrote of his son:
I'm so, so sorry my little man. He came into this world early and in a hurry on the 10.25pm 27/12/2019.
You struggled and fought the strongest battle but the world is just to much of a cruel place for you. You deserved to be in a far nicer place where you are free from pain and suffering.
He hung in there until he had met all his brothers and sisters and his Granny and Pop and got some special time with his brother Myles.
And finally fell asleep forever in his Daddy's arms while his Mummy cuddled them on the 28/12/2019 at 430pm.
Forever Perfect. Forever One day old. Forever Loved.
"We have also had a lot of people ask us what they can do to help, our boy didn't survive a CDH," they wrote.
"We have set up a fundraiser in Miller's memory to help raise much needed funds and awareness towards this problem.
"CDH is symbolised by a sunflower, every time you see one, think of our Miller, or grab some seeds to plant in his memory."
You can find the fundraiser at https://bit.ly/37C1981